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Dr. Ethan Basch, the Director of the UNC Cancer Outcomes Research Program, has been awarded the 2019 Clinical Research Award by the Association of Community Cancer Centers (ACCC).

The UNC Cancer Outcomes Research Program is a large program that brings together different researchers performing pharmacoepidemiology research and patterns of care research.

As the director, Dr. Basch has spent decades developing and implementing patient-reported outcomes tools.

His work also involves developing various methods to include patient perspective into cancer clinical research and delivery of care.

Dr. Basch found that most clinicians and investigators miss almost 50 percent of the drug-related symptoms that the cancer patients experience.

He further revealed that the best way to gather information regarding subjective patient experience is to ask the patients about it via different approaches such as questionnaires.

According to Dr. Basch, big pharmaceutical companies must consider building digital therapeutics groups that utilize patient-reported outcomes to monitor the patient’s symptoms.

3 Key Points

  1. The ACCC has awarded its 2019 Clinical Research Award to Dr. Ethan Basch based on his efforts to bring the patient perspective into cancer clinical research and delivery of care.
  2. Basch has revealed that up to 50 percent of the symptoms that most cancer patients experience is related to the use of drug products and are usually missed by most clinicians.
  3. According to Dr. Basch, it is important to use patient-reporting tools to completely understand the impacts of the products or the patient supportive care needs.

The best way to obtain information about the subjective patient experience is to systematically ask patients about it. One approach is to collect this information from patients via the use of questionnaires. We also need to understand that it’s not just a matter of asking questions. We must ask questions the right way, and do it regularly, not just when the patient visits the clinic.“- Dr. Ethan Basch, Director of the Cancer Outcomes Research Program and professor of hematology and oncology at the University of North Carolina Lineberger Comprehensive Cancer Center.

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Image Source:, ACCC

#ClinicalData, #ElectronicDataCapture, #DigitalHealth

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